Ethical Issues in Genetic Testing: the Who, What, Where, How and Why of Sequencing Information

The advances of genetic and genomic medicine within clinical practice enable more precisioned, predictive care decisions. But with these new capabilities and access points to patient information come new ethical challenges. Understanding which information will be clinically valuable, how and where that information should be stored, who can access it and why are just starting points for ethical consideration. Joining Dr. Howard Levy to explore this important topic in greater depth is Dr. Wylie Burke, Professor of Bioethics and Humanities at the University of Washington. Dr. Burke is also Principal Investigator of the University of Washington Center for Genomics and Healthcare Equality, an NIH-funded Center of Excellence in Ethical, Legal, and Social Implications (ELSI) Research, and dual Principal Investigator of the Northwest-Alaska Pharmacogenomic Research Network. Her research addresses the social, ethical and policy implications of genetic information.