Psychosocial Considerations in Managing XLH

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From Child to Adult: Successful Transitional Care for X-Linked Hypophosphatemia

Psychosocial Considerations in Managing XLH

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  • Overview

    X-linked hypophosphatemia is misperceived as a childhood-only disease. In reality, patients of all ages and their clinicians struggle with lifelong, difficult-to-manage consequences. This program presents crucial fundamentals for clinicians seeking to control disease impacts, prevent complications and improve patient quality of life.

    The following information is discussed:

    • The critical importance of early awareness, timely diagnosis and challenges of frequent misdiagnoses
    • Countering misperceptions that confound long-term care and worsen outcomes
    • Health Care Transition (HCT) recommendations to smoothly move patients from child to adult care models
    • Care planning essentials to improve a patient's lifelong journey with a rare disease
    • Tools to educate and empower patients while facilitating meaningful patient-clinician communications 
  • Target Audience

    This activity has been designed to meet the educational needs of the interprofessional team, including rheumatologists, endocrinologists (pediatric and adult), pediatricians, nephrologists, family practitioners, primary care physicians, geneticists, pharmacy specialists, nurses, nurse practitioners, and other clinicians, involved in the management of patients with X-linked Hypophosphatemia (XLH).

  • Learning Objectives

    After participating in this educational activity, participants should be better able to:

    • Create an urgency to “diagnosis and treat early” and the importance of understanding the signs and symptoms and the impact if you miss the diagnosis
    • Ensure that the coordinated transition process begins early and allows flexibility for individuals as they share well-defined healthcare transition (HCT) recommendations for XLH patients
    • Demonstrate through shared best practice approaches to transition and how to utilize tools and age-appropriate services for teenagers and young adults in the continuum of care
  • Accreditation and Credit Designation Statements

    In support of improving patient care, this activity has been planned and implemented by Global Learning Collaborative (GLC) and TotalCME, Inc. GLC is jointly accredited by the American Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE) and the American Nurses Credentialing Center (ANCC) to provide continuing education for the healthcare team.
    This activity was planned by and for the healthcare team, and learners will receive 1.5 Interprofessional Continuing Education (IPCE) credits for learning and change

  • Faculty Disclosure of Commercial Relationships

    Disclosure Policy
    In accordance with the ACCME Standards for Integrity and Independence, Global Learning Collaborative (GLC) requires that individuals in a position to control the content of an educational activity disclose all relevant financial relationships with any ineligible company. GLC mitigates all conflicts of interest to ensure independence, objectivity, balance, and scientific rigor in all educational programs. 

    The following faculty have disclosed:

    John D. Mahan, MD, chair for this educational event, receives research funds from OPKO; and receives consulting fees from Ultragenyx.

    Guido Filler, MD, PhD, FRCPC, faculty for this educational event, receives honoraria and advisory fees from Ultragenyx Canada.

    Maria E. Díaz-González de Ferris, MD, MPH, PhD, faculty for this educational event, receives honoraria and advisory fees from ProKidney.

    Anne E. Dawson, PhD, faculty for this educational event, has no relevant financial relationships with ineligible companies.

  • Planners and Managers Disclosure List

    The following planners/reviewers/managers have disclosed:

    Prerna Poojary, PhD  planner for this educational event, has no relevant financial relationships with ineligible companies.

    William Mencia, MD, FACEHP, CHCP, reviewer for this educational event, has no relevant financial relationships with ineligible companies.

    TotalCME, Inc. planners and managers have no relevant commercial relationships to disclose.

    All the relevant financial relationships for these individuals have been mitigated.

  • Disclaimer

    The views and opinions expressed in this educational activity are those of the faculty and do not necessarily represent the views of GLC and TotalCME, Inc. This presentation is not intended to define an exclusive course of patient management; the participant should use his/her clinical judgment, knowledge, experience, and diagnostic skills in applying or adopting for professional use any of the information provided herein. Any procedures, medications, or other courses of diagnosis or treatment discussed or suggested in this activity should not be used by clinicians without evaluation of their patient's conditions and possible contraindications or dangers in use, review of any applicable manufacturer’s product information, and comparison with recommendations of other authorities. Links to other sites may be provided as additional sources of information. Once you elect to link to a site outside of MedEd On The Go you are subject to the terms and conditions of use, including copyright and licensing restriction, of that site.

    Reproduction Prohibited
    Reproduction of this material is not permitted without written permission from the copyright owner.

  • Acknowledgment

    This activity is supported by an independent educational grant from Ultragenyx Pharmaceutical Inc.

    Jointly provided by Global Learning Collaborative (GLC) and TotalCME, Inc.

  • Fee Statement

    This activity is FREE to all participants.

  • Instructions for Completion

    During the period 12/22/2022 through 12/22/2023, registered participants wishing to receive continuing education credit for this activity must follow these steps:

    1. Read the learning objectives and faculty disclosures.
    2. Answer a pre-program question.
    3. View the program.
    4. Complete the post-test with a score of 100%. 
    5. Complete activity evaluation.
    6. Apply for credit and either bank your credits or print your certificate.

    For Pharmacists: Upon successfully completing the post-test with a score of 100% and the activity evaluation form, transcript information will be sent to the NABP CPE Monitor Service. This may require you to add or update the e-profile ID/date of birth information saved in your account.

  • System Requirements

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  • Publication Dates

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Schedule1 Dec 2023