Amplifying Voices in Endometriosis
A CME/CE-certified initiative dedicated to promoting shared decision-making and patient-centered care for endometriosis for US-based healthcare professionals.
In collaboration with:
"Endometriosis remains a daunting diagnostic and therapeutic challenge... Advances in our ability to accurately diagnosis this condition, along with new and novel interventions that more effectively treat and reverse the adverse clinical impacts of endometriosis, necessitate educational outreach to all who provide care to reproductive-aged women."
Initiative Host, Lee Shulman, MD, FACOG, FACMG
Inside the Studio: Creating EndoVOICE
Get an exclusive behind-the-scenes look at the making of EndoVOICE, a groundbreaking social learning campaign. Watch as experts and patient influencers collaborate to create impactful content aimed at transforming endometriosis care through education and shared decision-making.
Full-Length EndoVOICE Education:
EndoVOICE Resource Center
Discover a curated collection of foundational, practical, and real-world educational resources at your fingertips. Click on a link to get started.
Endometriosis Diagnostic Delay
items
Kim MR, Chapron C, Römer T, et al. Clinical diagnosis and early medical management for endometriosis: consensus from Asian expert group. Healthcare (Basel). 2022;10(12):2515. doi:10.3390/healthcare10122515
Simpson CN, Lomiguen CM, Chin J. Combating diagnostic delay of endometriosis in adolescents via educational awareness: a systematic review. Cureus. 2021;13(5):e15143. doi:10.7759/cureus.15143
Chapron C, Marcellin L, Borghese B, Santulli P. Rethinking mechanisms, diagnosis and management of endometriosis. Nat Rev Endocrinol. 2019;15(11):666-682. doi:10.1038/s41574-019-0245-z
Allaire C, Bedaiwy MA, Yong PJ. Diagnosis and management of endometriosis. CMAJ. 2023;195(10):E363-E371. doi:10.1503/cmaj.220637
Agarwal SK, Chapron C, Giudice LC, et al. Clinical diagnosis of endometriosis: a call to action. Am J Obstet Gynecol. 2019;220(4):354.e1-354.e12. doi:10.1016/j.ajog.2018.12.039
Ballard K, Lowton K, Wright J. What’s the delay? A qualitative study of women’s experiences of reaching a diagnosis of endometriosis. Fertil Steril. 2006;86(5):1296-301. doi:10.1016/j.fertnstert.2006.04.054
Promoting Healthcare Equality in Endometriosis
items
Westwood S, Fannin M, Ali F, et al. Disparities in women with endometriosis regarding access to care, diagnosis, treatment, and management in the United States: a scoping review. Cureus. 2023;15(5):e38765. doi:10.7759/cureus.38765
Bougie O, Yap MI, Sikora L, Flaxman T, Singh S. Influence of race/ethnicity on prevalence and presentation of endometriosis: a systematic review and meta‐analysis. BJOG. 2019;126(9):1104-1115. doi:10.1111/1471-0528.15692
Bougie O, Nwosu I, Warshafsky C. Revisiting the impact of race/ethnicity in endometriosis. Reprod Fertil. 2022;3(2):R34-R41. doi:10.1530/raf-21-0106
Drinkell K, Fajzel H, Tordon K. Patient and practitioner: the impact of social factors on diagnostic delay for endometriosis. URNCST. 2023;7(3):1-11. doi:10.26685/urncst.450
Saigle V. “Patients deserve agency when it comes to their body”: a patient’s experience with endometriosis. CMAJ. 2023;195(10):E377. doi:10.1503/cmaj.230215
Centers for Medicare & Medicaid Services. The Accountable Health Communities Health-Related Social Needs Screening Tool. 2017. https://www.cms.gov/priorities/innovation/Files/worksheets/ahcm-screeningtool.pdf
Patient-Centric Tools and Shared Decision-Making in Endometriosis
items
Stull DE, Wasiak R, Kreif N, et al. Validation of the SF-36 in patients with endometriosis. Qual Life Res. 2014;23(1):103-117. doi:10.1007/s11136-013-0442-5
Gravel K, Légaré F, Graham ID. Barriers and facilitators to implementing shared decision-making in clinical practice: a systematic review of health professionals’ perceptions. Implement Sci. 2006;1:16. doi:10.1186/1748-5908-1-16
Jones G, Kennedy S, Barnard A, Wong J, Jenkinson C. Development of an endometriosis quality-of-life instrument: the Endometriosis Health Profile-30. Obstet Gynecol. 2001;98(2):258-264. doi:10.1016/s0029-7844(01)01433-8
Informed consent and shared decision making in obstetrics and gynecology: ACOG Committee Opinion, Number 819. Obstet Gynecol. 2021;137(2):e34-e41. doi:10.1097/AOG.0000000000004247
Cetera GE, Facchin F, Viganò P, et al. “SO FAR AWAY” How doctors can contribute to making endometriosis hell on earth. A call for humanistic medicine and empathetic practice for genuine person-centered care. A narrative review. Int J Womens Health. 2024;16:273-287. doi:10.2147/ijwh.s440542
Bourdel N, Chauvet P, Billone V, et al. Systematic review of quality of life measures in patients with endometriosis. PLoS One. 2019;14(1):e0208464. doi:10.1371/journal.pone.0208464
A Role for GnRH Antagonists in Endometriosis
items
Rzewuska AM, Zybowska M, Sajkiewicz I, et al. Gonadotropin-releasing hormone antagonists—a new hope in endometriosis treatment? J Clin Med. 2023;12(3):1008. doi:10.3390/jcm12031008
Osuga Y, Seki Y, Tanimoto M, Kusumoto T, Kudou K, Terakawa N. Relugolix, an oral gonadotropin-releasing hormone (GnRH) receptor antagonist, in women with endometriosis-associated pain: phase 2 safety and efficacy 24-week results. BMC Womens Health. 2021;21(1):250. doi:10.1186/s12905-021-01393-3
Lamb YN. Elagolix: first global approval. Drugs. 2018;78(14):1501-1508. doi:10.1007/s40265-018-0977-4
Giudice LC, As-Sanie S, Arjona Ferreira JC, et al. Once daily oral relugolix combination therapy versus placebo in patients with endometriosis-associated pain: two replicate phase 3, randomised, double-blind, studies (SPIRIT 1 and 2). Lancet. 2022;399(10343):2267-2279. doi:10.1016/S0140-6736(22)00622-5
Agarwal SK, Daniels AM, Drosman SR, et al. Treatment of endometriosis with the GnRHa deslorelin and add-back estradiol and supplementary testosterone. Biomed Res Int. 2015:2015:934164. doi:10.1155/2015/934164
Becker CM, Johnson NP, As-Sanie S, et al. Two-year efficacy and safety of relugolix combination therapy in women with endometriosis-associated pain: SPIRIT open-label extension study. Hum Reprod. 2024;39(3):526-537. doi:10.1093/humrep/dead263
Carr B, Dmowski WP, O’Brien C, et al. Elagolix, an oral GnRH antagonist, versus subcutaneous depot medroxyprogesterone acetate for the treatment of endometriosis: effects on bone mineral density. Reprod Sci. 2014;21(11):1341-1351. doi:10.1177/1933719114549848
GnRH Antagonists (Hormonal Therapy) Prior to or Post Surgery
items
Singh SS, Gude K, Perdeaux E, Gattrell WT, Becker CM. Surgical outcomes in patients with endometriosis: a systematic review. J Obstet Gynaecol Can. 2020;42(7):881-888.e11. doi:10.1016/j.jogc.2019.08.004
Chapron C, Marcellin L, Borghese B, Santulli P. Rethinking mechanisms, diagnosis and management of endometriosis. Nat Rev Endocrinol. 2019;15(11):666-682. doi:10.1038/s41574-019-0245-z
Chen I, Veth VB, Choudhry AJ, et al. Pre- and postsurgical medical therapy for endometriosis surgery. Cochrane Database Syst Rev. 2020;11(11):CD003678. doi:10.1002/14651858.CD003678.pub3
Agarwal SK, Chapron C, Giudice LC, et al. Clinical diagnosis of endometriosis: a call to action. Am J Obstet Gynecol. 2019;220(4):354.e1-354.e12. doi:10.1016/j.ajog.2018.12.039
The Clinicians and Advocates Driving EndoVOICE
Meet the dedicated team behind EndoVOICE. Together, we're committed to improving care, raising awareness, and providing vital information to empower those affected by endometriosis.
Lee Shulman, MD, FACOG, FACMG
The Anna Ross Lapham Professor and Chief
Division of Clinical Genetics
Feinberg School of Medicine
Northwestern University, Chicago, IL
Ayman Al-Hendy, MD, PhD, FRCSC, FACOG, CCRP
Professor of Obstetrics and Gynecology
The University of Chicago
Chicago, IL
Linda Bradley, MD
Professor of Obstetrics & Gynecology and Reproductive Medicine
Cleveland Clinic
Cleveland, OH
James A. Simon, MD, CCD, NCMP, IF, FACOG
Clinical Professor, Obstetrics and Gynecology
George Washington University
Women’s Health & Research Consultants
IntimMedicine Specialists
Washington, DC
Melissa Simon, MD
Vice Chair and Professor, Obstetrics and Gynecology
Founding Director, Center for Health Equity Transformation
Lurie Cancer Center
Associate Director, Community Outreach & Engagement
Northwestern University Feinberg School of Medicine
Chicago, IL
Sawsan As-Sanie, MD
Associate Professor, Obstetrics and Gynecology
Director of the Minimally Invasive Gynecology Fellowship, Obstetrics and Gynecology
Director of the Endometriosis Center
University of Michigan
Ann Arbor, MI
Samantha Denäe
Endometriosis Educator
Atlanta, GA
18k+ followers
@_samanthadenae_
Casey Joe Hinds
Patient Advocate & Community Influencer
Atlanta, GA
130k+ followers
@itscaseyjoe
Lauren Kornegay
Founder and Executive Director of Endo Black Incorporated
Oxon Hill, MD
20k+ followers
@endo_black
Ashley (Diment) Cholast
Endometriosis Patient Advocate
Strategic Account Director, ReachMD
Fort Washington, PA
2k+ @ashleycholast
More About EndoVOICE
Transforming Endometriosis Care Through Social Learning and Patient-Centered Education
EndoVOICE is a yearlong social learning campaign developed by Omnia Education and ReachMD to improve endometriosis care. This initiative aims to educate healthcare providers through 15 CME episodes and numerous social media posts emphasizing early diagnosis, patient-centered care, and shared decision-making. Leveraging social media platforms, podcasts, and highly focused short-form education, EndoVOICE seeks to reach over 450,000 clinicians to enhance their knowledge and practice through engaging, data-driven content.
EndoVOICE on ReachMD
Check out EndoVOICE on the ReachMD website or the ReachMD mobile app today! Stay connected with cutting-edge information and a supportive community dedicated to advancing endometriosis care.
Get social with this CME-certified limited series
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